Friday, May 20, 2011
Sorry it has been a while since I updated this, the blog website has been down. Somara started her iv ig infusions in April. She will get one every month. It is about an 8 hour process. The infusions make her really sick for about three days after she gets them. She runs fever, has respiratory problems and looks washed out. They are not good days for her. The infusions in the long run should help build her immune system so she has an easier chance of fighting infection. She is quite the little trooper. :-) She got her bipap machine last week, but it is going to be tough to get her to use it because the mask covers her whole face and she is terrified of it. God has really kept her in his hand the last couple of months, there was s couple of times she stopped drinking and got dehydrated, but I was able to get enough fluids through her button to keep her home. The Dr told us last month that they thought she had lost most of the hearing in her left ear. Today we took her for a double audio test and found out that she is normal in both ears and that during the hearing test she just was not responding to humming, but she did respond to noises in both ears. What a blessing! God is so good and every day he gives us strength to continue. Somara is such a blessing and a wonderful baby and I am truly lucky to be her mom. It seems like the doctors have finally got her on the right path to being better. Our next thing that we will be dealing with is looking into getting her sub mucous cleft pallet repaired. We are going to see a cranialfacial surgeon next Friday.