Tuesday, February 8, 2011

Getting started...

For those of you that are familiar with what is going on this might be a repeat, but those of you that are not this will hopefully give you an update.
Somara was born in June 2009. She has had many health issues and many struggles that she has had to overcome.  In September of 2009 Somara was admitted into the hospital with meningitis. She was there for 10 days and that was the beginning of her long road. She is now 20 months old and has been admitted 11 or 12 times into the hospital. She has had 2 surgeries, which include a vascular ring repair and placement of a g-button. She has also had two sets of ear tubes.  Somara has been diagnosed with DiGeorge Syndrome.  She does not have much of an immune system, therefor she can not fight off infections like most kids.  It has been a constant battle for our family.  We took her to Childrens Hospital of Philadelphia in December to have the specialist there see her.  We have had to adjust alot to accommodate her needs.  I have quit my job to stay home with her. Somara is in physical, speech, and occupational therapy two days a week.  She has leg braces that have helped her with stability when she is walking.  Somara is a very special baby and we are so blessed to have her.  When things get really stressful and tough I thank God that she is here and just pray that he will give me the strength to keep going and to be the mother that Somara needs in her time of struggles.

No comments:

Post a Comment